Availability of data may vary, but below are potential resources that may help to establish need:
1. People Who Use Drugs (PWUD)—See Involving PWUD
in the Design of the Model on page 14 of toolkit pdf
2. Emergency Medical Services (EMS) data—Frequency
and location of narcotic-related incidents (NRI)
– Strengths—Provides quantitative and geospatial
presentation of data; data updated frequently;
allows for quantification of resources allocated
to address overdose epidemic; sometimes
differentiates overdoses that occur in a residential
setting versus a “public” setting (e.g. street,
shelter, public restroom, etc.), which allows mobile
programs to prioritize highly vulnerable populations
– Weaknesses—Incidents captured only if someone
called 911 (data incomplete); categorization of
incident as an NRI made by paramedics, often
with incomplete information (some incidents
may be misclassified); data may not be readily
accessible and often has delayed release and
presented in aggregate form; privacy concerns
may limit access to such data; demographic
information not always captured
3. Data/Metrics from local syringe service program
(SSP)—SSPs often have information on population
needs, service utilization and health indicators
such as overdose history and naloxone rescues
from participants
– Strengths—Demonstrate service needs
and utilization in high-risk population; often
trusted resource for PWUD with unique
and invaluable insights
– Weaknesses—Not all regions have nearby
SSPs; SSPs may be under-resourced and have
difficulty managing data requests; maintaining
confidentiality is crucial and could complicate
sharing of some data
4. 3-1-1 data—Municipal areas that track nonemergency constituent requests may capture
indicators of high-risk activity or populations. Useful
indicators may include (1) reports of improperly
discarded syringes, or (2) homeless encampments
– Strengths—3-1-1 data are often public; may
reveal trends traditional data sources miss; data
updated frequently
– Weaknesses—Less-established or utilized
3-1-1 systems may have few data points; 3-1-1
systems may not be designed for data extraction;
neighborhoods more likely to report incidents may
not align with the neighborhood who experience
the highest number of incidents
5. Death data—Frequency and location of deaths where
overdose was the cause
– Strengths—Robust dataset with a lot of information
– Weaknesses—Typically very delayed data source,
data may be months/years old; privacy concerns
may limit access to such data
6. Involuntary commitments for substance use disorder
(SUD)—Frequency and location of involuntary
commitments of individuals who have SUD
– Strengths—May be indicative of a high-risk
population, but likely most helpful as
a supplemental source
– Weaknesses—Smaller sampling than other data
sources; privacy concerns may limit access to
such data
7. Hospital emergency department data—Frequency,
demographic information, location and chief
complaint data for regional hospitals
– Strengths—Timely information about emergency
department visits related to drug use/overdose
– Weaknesses—Does not account for drug events
that do not result in hospital visit; data might not
be readily accessible depending on region; chief
complaint data may be non-specific, resulting in
underreporting and miscategorization
8. Arrest Data—Frequency of drug-related arrests
may point to areas of high need
– Strengths—Police departments may have robust
data sets that allow precision in pinpointing
high-risk activity
– Weaknesses—Data may not be accessible
by public; arrests offer incomplete picture
9. Epidemiologic data around Hepatitis C and HIV—
Incidence and location of Hepatitis C and HIV
diagnoses may indicate high-risk activity
– Strengths—Epidemiologic reports and data are
typically accessible in any region; provides baseline
data which can help demonstrate impact of
harm reduction work and unmet needs of PWUD;
longitudinal data may provide trends over time
– Weaknesses—Hepatitis C is not reportable in
all states; data reports can be quite delayed;
health departments may have incomplete data
on risk for Hepatitis C and HIV cases; diseases
are underreported
10. Meetings/focus groups with stakeholder agencies
serving PWUD—Provide qualitative data on
experiences with PWUD including areas of high
need, service utilization and barriers to care
– Strengths—Diverse perspectives and experience;
lays foundation for future collaboration on mobile
health project
– Weaknesses—Time-and-resource intensive;
number of available stakeholder agencies varies
greatly by region